Sunday 22 February 2015

DEMENTIA

She was a small, frail, but proud woman.  They were two weeks away from their fifty-sixth wedding anniversary when she became a widow. Not that it was a surprise, she knew it was coming ever since he was diagnosed with cancer. He was pushing ninety and at his age, conventional cancer therapy was almost a no-no, he was put on palliative care, and in such care, he remained until his last breath.

She bid a silent farewell to the body of her companion of more than half a century as the hearse left the house on his final journey. Some close relatives kept her company while her son and other family members performed the last rites for her husband at the crematorium. But she did not cry.  All she said was, “He’s gone.” Then kept quiet.

A few months earlier, when he had been hospitalized for the first time, and she had gone to visit him, he had told her to get used to living with her son. She found that paradigm shift too hard to digest. The proud woman that she was, she had, till then, always fiercely held on to her will to stay in her own house, away from the children and grandchildren, live life on her own terms, and have periodic meetings with the family.

There comes a time in a person’s life, when living alone is impossible, and one has to have a support system built around oneself. Her son tried to build one around her; after her husband passed away, and she had to come and live with him and his family in the apartment in the city. He hired a couple of nurses to take care of her night and day. She resented them – saying her “bouma” (daughter-in-law) and grandchildren were good enough company. But he insisted, and the nurses continued.

She hobbled around the apartment with a walker and spent her days reading books and newspapers, and sometimes, when perhaps, her memories came flooding back, heaved a sigh, and kept on reading. Her grandchildren always made her smile; she would recite Sanskrit slokas – slokas that her son had heard from childhood… most of them extolled the virtues of being a mother, some talked about righteousness, while the rest were about mundane everyday events.

Her short-term memory began to fail. She would have lunch and then ask for it again, vehemently arguing that she was yet to eat. By and by people noticed that she would keep reading the same page in a book or news item over and over again, throughout the day, and if that piece of information caught her fancy, kept telling it to everyone in the house. Over time, her long-term memory too, began playing tricks. One day she said that she had seen snowfall – in an area where no snow had ever fallen in history. When her son said that it was not possible, she retorted that it was before he was born.

At the prayer meeting on the first anniversary of his father’s death, she attended the ceremony and asked her son, “Is it one year already ? You must be joking… check your calendar.” When people explained that one year had indeed passed, she said, “I thought he was still in hospital.”

One day her son asked her, “Do you remember Dad always saying that he built the house in the suburbs so that the grandchildren would have a place to play ?” She responded by saying that she wanted to visit that house in the suburbs once again, where she had spent the last thirty years. That weekend they all trooped down to the place, and then emerged a crisis of sorts when she steadfastly refused to leave. “You can take my dead body out,” was her firm reply. No amount of requests, pleading, threats was working. Her son and his family had to leave her there that night, with the caretaker’s family for company.

The next morning came a desperate phone call from the caretaker; he and his wife simply could not make her eat, or sleep the previous night, and given her frail health, things could get serious. Her son took leave from office, and went down to the house – she had to be physically carried to the car and brought back to the city. Curses flowed freely – she cursed her son for the abomination, and said she never thought this day would ever come…she said she would write a letter to the world telling them of the “torture” she was being subjected to by him.

Back in the apartment, she once again entered into a shell, reading newspapers, watching the birds on the trees around, and uttering the slokas…. Her memory went from bad to worse… she would go into the toilet in the morning and forget to come out… over time the nurses had to prevent her from locking the door from inside, and sometimes they had to physically carry her out after the morning’s ablutions.

He talked to the doctor who was attending on her, asking if a few days in hospital would improve things. His response was a clear “no”, and he stressed on the point that dementia patients should not be put in hospitals.

And then she started falling over, sometimes on her back, sometimes on her face, even with a walker around her. One such fall was particularly bad; her face remained swollen for days.

“Do you remember Dad ?”, he asked her one day with great trepidation.
“Well, I am angry that he left me and went away, the only good thing is that it has not been for long, just a few days.” This was more than four years after his death.

Six weeks before her eighty-third birthday, she woke up one morning and said she was not feeling well. She asked her son to check her blood pressure, as she was moved to a chair beside the bed. And, while he was doing so, she passed away, silently. Just like that. Sitting on the chair. Small, frail, but proud, as she always had been.

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Dementia, to my mind, is perhaps as much a curse as a blessing in disguise.

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